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Family Voices of Alabama
(FV of AL) aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.

Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. 

Family Voices of Alabama was awarded a grant from the Maternal and Child Health Bureau to increase our services to the families in Alabama by establishing a Family-to-Family Health Information Center (F2F HIC). F2F HICs were established in all States and the District of Columbia by the Family Opportunity Act / Deficit Reduction Act of 2005. The Affordable Care Act of 2010 extended the F2F HIC Program through fiscal year 2012.

Our Vision

Every child and youth with special needs receives family-centered care.

Contact Us

Family Voices of Alabama
1050 Government Street
Mobile, AL 36604-2402
  
Email: info@familyvoicesal.org

Phone: 877-771-FVOA or
(877-771-3862)

Our Staff

Susan Colburn - susan@familyvoicesal.org

Gerald Oveson - jerry@familyvoicesal.org

National Family Voices

Family Voices of Alabama is the Family Voices State Affiliate Organization.  Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.  Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care. To learn more about the national initiatives of the National Family Voices, please visit their website at:
familyvoices.org 
(opens in new browser window).

*** News and Information ***

Good News!
Family Voices of Alabama has been notified that our competitive application for continued funding as the Family to Family Health Information Center in AL has been approved by HRSA and the Maternal and Child Health Bureau. Our work to build partnerships between families and providers, as well as equipping family leaders, will continue!
 

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Tips for Parents

Each child has different sleep needs, but one thing is the same; missing sleep is unhealthy. If your child has special health needs, sleep deprivation can make them worse. In general, school-aged children need 9 -10 hours a night.

 
*** More News and Information ***

 
Visit our Video Training Libraryto view sessions from past Partners in Care Summits. Add yourself to our contact list to get updates.

 
AMCHP National Standards of Care
The Association of Maternal & Child Health Programs (AMCHP), with support from the Lucille Packard Foundation for Children's Health, has released a groundbreaking set of standards (pdf) and companion background white paper (pdf) designed to help communities, states, and the national build and improve systems of care for children and youth with special health care needs (CYSHCN).

The standards address the core components of the structure and process of an effective system of care for CYSHCN and are intended for use or adaptation by a wide range of stakeholders at the national, state, and local levels.  CRS will work with other ADRS divisions (including Alabama's Early Intervention System and Vocational Rehabilitation Services) as well as community agencies and partners to incorporate these standards into all aspects of care and policymaking for the CYSHCN population in the state of Alabama.

Affordable Care Act is changing health insurance options - see our new tip sheets:

and this fact sheet

Partners in Care Summit

April 2015
It was great!
 
 
 

Keeping good records improves the care you receive. Care Notebook CoverOur health care notebook is a tool to help caregivers of children with special health care needs maintain an ongoing record of his/her child's care, services, providers, and notes.

We would be happy to talk with you about scheduling training for your group of families. Call or email us about your group.

Care Notebooks are now available in Spanish for you to download. Click here for more information.

Resources now available in Spanish
See what is available here. If you cannot find what you (or your client needs), please contact us. Limited quantities of our printed and assembled health care notebook are available. Call to discuss. Voice messages in Spanish will be forwarded to our Spanish-speaking outreach worker. She will return your call.
Los mensajes de voz en español serán enviados a nuestro agente de extensión de habla española. Se le devolverá la llamada.

Free iPhone app:   Polyglot Med Spanish is easy to use and the perfect tool to bridge the communication gap between health care providers and Spanish-speaking patients. Polyglot Med Spanish offers immediate audio translation of over 3,000 common words, phrases and assessment questions from English to Spanish and from Spanish to English.

Medical Home. From National Center for Medical Home Implementation learn how a medical home can support transitioning from pediatric to adult care in our medical home interview video series at http://youtu.be/6JfCsjxpLfo

  • Medical Home for Children and Youth with Special Health Care Needs – A Review of the Evidence. Click here.

Getting health care funded is no game, but you can test your knowledge of Medicaid and CHIP while having fun or with this link to a quiz on Medicaid from Kaiser Family Foundation.

  

CDC Act Early Quiz. Flash Player 9 is required.
CDC Act Early Quiz
Flash Player 9 is required.

The Milestones Quiz - Text Version »

 


This website was developed with funding from the Health Resources and Services Administration(HRSA)/
Maternal and Child Health Bureau (MCHB)/Division of Services for Children with Special Health Needs (DSCSHN),
through grant #H84 MC 12901.

Copyright © 2009-2015. Family Voices of Alabama. All rights reserved.